Latest News for: Of nf

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Story of NF: Buford T. (The Children's Tumor Foundation)

Public Technologies 20 Aug 2025
This story and photos were submitted through the 2025 I Know A Fighter Photo Contest, our annual campaign celebrating the strength, resilience, and everyday bravery of individuals living with all forms of NF.
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Story of NF: Chyenne D. (The Children's Tumor Foundation)

Public Technologies 06 Aug 2025
This story and photos were submitted through the 2025 "I Know A Fighter" Photo Contest, our annual campaign celebrating the strength, resilience, and everyday bravery of individuals living with all forms of NF.
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Story of NF: Aria (The Children's Tumor Foundation)

Public Technologies 31 Jul 2025
Aria was two months old when she was diagnosed with NF. She goes to the children's hospital every six months to see her NF team of a neurologist, ophthalmologist, optometrist, geneticist, cardiologist, ENT, dermatologist, etc ... To cure NF.
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Story of NF: Ivan R. (The Children's Tumor Foundation)

Public Technologies 27 Jun 2025
Although the news was hard to hear, it was good to finally have a name to attribute to what was going on, and we became part of a family that we never asked to belong to, but the NF community was very supportive.
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Listen In: How CTF Is Shaping the Future of NF Drug Development (The Children's Tumor Foundation)

Public Technologies 18 Jun 2025
The conversation delves into the complexities of NF, the power of cross-sector collaboration, and how CTF's strategic model can inspire and inform the work of other organizations.
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Story of NF: Jenelle B. (The Children's Tumor Foundation)

Public Technologies 17 Jun 2025
It has been difficult for me to read and understand, so I listened to lots of audiobooks ... I remember telling some people quickly that I have tumors and have NF, to look it up as to what it is.
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Story of NF: Everly F. (The Children's Tumor Foundation)

Public Technologies 04 Jun 2025
At six months old, I again brought it up to her pediatrician that her progress was not where it should be for all of the services and support she was receiving ... As of now, we have not had any NF-related setbacks aside from her gross motor delay.
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