Latest News for: Of nf

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Story of NF: Markus S. (The Children's Tumor Foundation)

Public Technologies 12 Nov 2024
We were still told not to worry, since these types of tumors never change ... We have also gotten involved in NF Midwest. I'm also part of REiNS ... Not long ago, Markus had a scare and lost more than two-third of his hearing overnight.
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Story of NF: Jana W. (The Children's Tumor Foundation)

Public Technologies 28 Oct 2024
Jana was seven when she found out about NF ... But she was courageous, and we trusted the Children's Hospital of Pittsburgh to save her life ... Her NF caused several different complications in her life ... Her face is slightly different from the NF.
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Assam: Train Services Restored in Derailment Affected Section of NF Railway

News18 19 Oct 2024
The first train to pass the site at Dibalong station was the SMVT Bengaluru-Agartala Express at 9.48 am, according to an NF Railway spokesperson ... .
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Story of NF: Remy H. (The Children's Tumor Foundation)

Public Technologies 15 Oct 2024
She was the youngest of six, but I called it mom's intuition ... We've been to three of the best pediatric hospitals in Ohio, and they ALL do things differently when it comes to NF1 ... She will have to be followed for the entirety of her life.
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8 Bold Minds, $888K to Fuel the Future of NF Research (The Children's Tumor Foundation)

Public Technologies 03 Oct 2024
The Children's Tumor Foundation (CTF) is excited to announce a significant investment of over $888,000 in research focused on neurofibromatosis type 1 (NF1) and all forms of schwannomatosis (SWN), including NF2-related schwannomatosis (NF2-SWN).
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Story of NF: Catherine R. (The Children's Tumor Foundation)

Public Technologies 02 Oct 2024
Judy Russo's daughter Catherine lived with NF1 and, at the age of 45, was diagnosed with breast cancer ... We are honored to share Catherine Russo's Story of NF ... She did make him aware of her NF, but that never caused the doctor to become alarmed.
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Story of NF: Norah (The Children's Tumor Foundation)

Public Technologies 23 Sep 2024
A nurse noticed all of Norah's CALs and referred us to dermatology, where we discussed the likelihood of NF or similar diagnoses. It was a lot of information to take in while keeping our emotions on hold.
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Stories of NF: Madeleine L. (The Children's Tumor Foundation)

Public Technologies 22 Aug 2024
But I remember growing up and going to the hospital once a year to get MRIs of my brain and spine ... I remember having a possibility of having scoliosis and what that would look like to fix that.
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Stories of NF: Tracy (The Children's Tumor Foundation)

Public Technologies 31 Jul 2024
Both of whom died of NF-related issues ... I was stricken with grief and NF health challenges at the same time ... I feel that it is important that I keep my creative mind alive so I can do my best to journal for myself and the benefit of others with NF.
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Stories of NF: Andrea M (The Children's Tumor Foundation)

Public Technologies 16 Jul 2024
My mom was a Medical assistant and had a patient with neurofibromatosis, so she knew a little bit about NF, so she got a medical book ... Living with NF is really hard ... I am blind in one of my eyes.
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Stories of NF: Rozalinda H (The Children's Tumor Foundation)

Public Technologies 27 Jun 2024
It was the most challenging day of my life, to be honest ... That was a BIG SHOCK! None of my family has NF2-SWN; does that make me special? Huh, I don't know, maybe yes! ... It hurts me more than any symptom of NF and any pain. And there's a lot of pain.
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Stories of NF: Shy (The Children's Tumor Foundation)

Public Technologies 17 Jun 2024
I remember lots of tests coming after that. Lots of trips to children's hospitals, seeing a geneticist, MRIs. I felt weird knowing I was the only person in my family with NF ... It wasn't until I was 13 that I found NF camp.
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Stories of NF: Madi & Ben (The Children's Tumor Foundation)

Public Technologies 07 Jun 2024
I was diagnosed in 2020 at the age of 23 ... I was frustrated with all of my doctors growing up AND my dermatologist for not catching it sooner. I recently (end of 2022) gave birth to my son who also has NF1.
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The Dark Rise of NF

Bitchute 01 Jun 2024
Go to the source via the article link to view the video or lcik the video icon ....
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Story of NF: Shaborah B (The Children's Tumor Foundation)

Public Technologies 30 May 2024
As an adult, I've suffered through adult bullies both in the workplace and random strangers who like to yell out hurtful things, people thinking I'm dangerous or someone to be afraid of, avoided, and often stared at.

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